The study shows the psychosocial burden for the supervisors of young people with Alopezien Area

Significant psychosocial and professional burdens are reported by nurses of young people who live with alopecia areas, close recent knowledge as well as intellectual and emotional well -being.¹

This data resulted from an analysis of researchers such as Rodney Sinclair, from the Sinclair Dermatology in Australia, which found the value of evaluating the effects of alopecia areata on the quality of life of the nurse to recognize uncovered needs among such people. They also found that the needs of nursing staff with regard to health care and social support are invaluable.

Before her current analysis, the investigation team emphasized that there was a remarkable lack of research in which the psychosocial and professional effects of hair loss on parents and supervisors were evaluated.²

“This study aimed to examine the effects of [alopecia areata] About psychosocial well -being, labor productivity and [quality of life] Among the supervisors of young people with [alopecia areata] I live in Australia, ”wrote Sinclair and colleagues.¹

From April to July 2023, the investigation team carried out a non-interventional online survey in Australia and worked on evaluating the experiences of caregivers of young people who live with Alopecia Area. They assessed both Dyadian supervisors, whose young people also have the survey of the study filled-out and non-dyadic caregivers, whose relatives did not fill out the survey or could not participate.

The recruitment of subjects was supported by the Australia Alopecia Area Foundation (AAAF), which contributed to spreading the survey nationally. Those who were considered an authorized person as respondents as parents or legal guardians at the age of 18. They currently have to take care of young people between the ages of 12 and 17, who lived at least 3 months before the survey with a medically confirmed, self -reported diagnosis by Alopecia Arata.

The nurses involved in the study as subjects filled out a number of questions of online screening to confirm their justification. The questionnaire for the participants was filled out online and included answering inquiries in connection with the treatment and clinical details (from caregivers for non -dyadic participants and young people themselves in dyadic couples), socio -demographic data and information on the psychosocial and work -related effects of the club for a virgin with alopecia arata.

Overall, Sinclair and colleagues found that Alopecia Area has remarkable psychological effects on their guards and supervisors in young people. Despite only 24.5% of all nurses who found symptoms of depression – a determination festival that was found that a previous US analysis rates were between 7.3% and 18.3% – the prevalence of anxiety in this sample with 62.3% significantly higher.

This was compared to the area of ​​the US study of 20.7% to 42.7%. Remarkably, the investigation team emphasized that the severity, which was observed in dyadic caregivers of the hair loss of young people, showed a limited influence on the reported fear or depression.

The quality of life was evaluated by the team based on the quality of life in the questionnaire on the chronic illness in children (QLCCDQ), whereby guardians and supervisors in the analysis highlight lower values ​​in all areas compared to a reference population of caregivers of children who were described as healthy. The reported mean values ​​included: symptoms (4.0), emotions (4.0), family (5.8), social (5.2) and professionally (5.3), compared values ​​of 5.9, 6.2, 6.3, 6.6 or 6.4 below those in the healthy cohort. Such findings indicate a reduced quality of life that is associated with the care of young people with the hair loss state.

In the results of their study, Sinclair and Co authors pointed out some remarkable differences between Dyadic and non -dyadic caregivers. It was found that non -dyadic supervisors have higher fear and depression values ​​as well as lower QLCCDQ values ​​compared to their dyadic counterparts. This finding would indicate a heavier psychosocial and professional stress.

Although the investigators found that the reason for such differences is not clear, it was a possible explanation that they emphasized that young people who deal with heavier alopecia effects may have declined to participate in the survey. This decision would increase the stress level among its supervisors.

In addition, the investigation team found that more than half of the supervisors (50.9%) had experienced impairments in their daily activities. They also found that almost half (49.1%) of the test subjects pointed out the effects of their work performance and further underlines the remarkable professional stress on the care of a young person with Alopecia Area.

“The study showed a considerable psychosocial and professional stress and impaired emotional well -being among the caregivers of young people [alopecia areata]“They closed.¹ “[Alopecia areata] In adolescents, the entire family can be deeply influenced, and these results underline the importance of recognizing and understanding the disease -related burden that goes beyond the individual patient. “

References

1. Sinclair R., Eisman S., Lee CMY, da Fonseca Pereira C, et al. (2025). Psychosocial and professional stress for the supervisors of young people with alopecia areas in Australia. Australas J Dermatol. https://doi.org/10.1111/ajd.14519.

2. E Putterman, DP Patel, G Andrade et al. “Severity and quality of life in parents of children with Alopezie Area, Totalis and Universalis: A prospective cross -sectional study”, Journal of the American Academy of Dermatology 80, No. 5 (2019): 1389–1394,